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What is the impact of pediatric palliative care on palliative outcomes?
What are factors associated with quality of pediatric palliative care, measured by improved palliative outcomes?
What are the broader social costs and benefits of quality pediatric palliative care?
Methods and measurements
The Task Force concludes that determining measures and outcomes of pediatric palliative care in general and quality of care in particular is an important step in evaluating the effectiveness of pediatric palliative care. How the Task Force proceeds will depend on the specific context of the palliative care field and the resources available. The Task Force suggests that the needs of patients, families, and care providers, as well as programmatic questions of resources, population, and value, should be considered when developing measures.
Task Force members would like to see measures that take the broader context of the field into account, and that are flexible and powerful enough to inform the decisions and decisions to be made. Measures designed to assess quality of pediatric palliative care should be specific to the context and population in which the care is provided, should be highly reliable and valid, and should be responsive to rapid changes in the field.
Measures that cannot be easily adapted to individual programs or settings will not allow for comparison between programs. Both the Task Force and the broader field should work together to
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